End of Life Care, Mindfulness-Wellness / 02.12.2024

Navigating end-of-life care is one of the most challenging experiences for patients, their families, and even healthcare providers. It’s a time that demands not just medical expertise but also deep empathy and thoughtful strategies to address physical, emotional, and spiritual needs. Compassionate care at this stage is about enhancing comfort, preserving dignity, and offering support to everyone involved. Here are six strategies that can help create a meaningful and caring experience during this significant time. Mindfulness to Ease the Emotional Burden  Mindfulness has emerged as a powerful tool for managing the emotional complexities that accompany end-of-life care. Patients and their caregivers often face heightened stress, anxiety, and feelings of loss. Incorporating mindfulness training into care plans can help alleviate these emotional burdens by encouraging presence and acceptance. Studies have shown that mindfulness practices not only help patients process their emotions but also equip caregivers to better cope with the pressures they face. By focusing on the present moment, mindfulness provides a space for calm reflection and meaningful connection, even amidst the challenges of this stage. Whether it’s guided breathing exercises, meditation, or simply being present with loved ones, these practices can create more peace. (more…)
Disability Research / 20.09.2024

Supporting a loved one with a disability is not only challenging for the caregiver but can also be incredibly difficult for the person living with the disability. Daily tasks, social interactions, and emotional well-being often become more complicated to manage, leading to frustration and feelings of isolation. However, with the right approach and practical strategies, you can provide valuable support that makes a real difference for both of you. This guide outlines five key ways to effectively assist a family member with a disability, helping to create a more supportive and understanding environment. (more…)
PT-Rehabilitation, Social Issues, Telemedicine / 22.08.2024

Recovering from surgery or a significant injury is a journey that’s increasingly taking place in the comfort of home. The idea is simple but powerful: familiar surroundings, combined with the right tools and support, can significantly enhance the recovery process. Recent advancements in rehabilitation have made home care more effective than ever. From innovative mobility equipment to telehealth services that bring therapists into the living room, these trends are reshaping how we approach recovery. This post explores how these trends are making home care a more viable and often preferable option for those on the road to recovery.

The Rise of Home-Based Rehabilitation

Why Home Care is Gaining Popularity

The appeal of home-based recovery goes beyond comfort - it is also about the psychological benefits. Home is where people feel most relaxed and supported, which can accelerate the healing process. Studies have shown that lower stress levels, often experienced at home, contribute to faster recovery. The ability to maintain daily routines in a familiar environment provides both physical and emotional comfort, motivating patients to stick with their recovery plans.  

Impact of COVID-19 on Home Rehabilitation

The COVID-19 pandemic accelerated the shift towards home-based care. With hospitals under strain and concerns about exposure to the virus, many turned to home care as a safer option. This shift highlighted that with the right support and equipment, such as a rotating bed is a lifesaver for those with limited mobility, effective rehabilitation can indeed happen at home. Telehealth services have played a crucial role in this transition, allowing patients to consult with healthcare providers remotely. This not only reduces the risk of infection but also offers the flexibility to receive care at convenient times, making home recovery more accessible. (more…)
Geriatrics, Health Care Workers / 16.08.2024

What are the key factors when choosing in-home care for a loved one? How can you ensure they receive the highest quality and compassionate care? Selecting the proper in-home care is crucial for maintaining comfort and dignity. Let's explore the essential aspects to look for in in-home care.

Assessing Lifestyle Compatibility

When searching for “in home care agencies near me”, it's important to consider how well the service will fit with your loved one's lifestyle. The agency should respect and accommodate their daily routines and preferences. This includes meal times, hobbies, and social activities. A compatible lifestyle ensures a smooth transition and maintains the individual's comfort. Moreover, personalized attention to lifestyle helps improve mental health and overall well-being. Feeling at ease in a familiar environment boosts happiness and reduces stress. The caregivers must understand and integrate these aspects into their care plans. This compatibility is a cornerstone of quality in-home care. (more…)
Accidents & Violence, Aging, Technology / 11.06.2024

Falls are one of the leading causes of injury among older adults, making the availability of fall detection in medical alert systems essential. Having a medical alert system with fall detection can provide peace of mind, knowing that help will be on the way even if you can't push a button. This feature can be particularly critical in emergencies where immediate assistance can significantly affect outcomes. This article takes you through the reasons why having a fall detection system is an essential add-on to your medical alert system.

fall-protection-deviceFall Detection Technology

Fall detection technology relies on advanced sensors and algorithms to ensure timely assistance when a fall occurs. This technology is built into various wearable devices, offering accuracy and reliability in monitoring movements and detecting falls.

How Fall Detection Works

Fall detection systems typically use accelerometers and gyroscopes embedded within the device to monitor movement patterns. When a fall is detected, the device triggers an alert, contacting emergency services or a designated caregiver automatically. These systems measure changes in speed and orientation to identify sudden impacts. They provide a vital safety net for individuals who might not be able to manually signal for help following a fall. (more…)
Geriatrics / 23.12.2023

Being a family caretaker is a labor of affection and a big duty, regardless of whether you are looking for your parents, spouse, or any other senior loved one. You must have the information and resources needed to provide the finest treatment possible in order to carry out such a vital responsibility. An elderly adult's ability to maintain excellent health depends on much more than just prescription drugs and medical care. If you want those closest to you to grow old at ease, independently, and vivaciously, here are the top 5 tips to go along with it.
  1. Encourage periodic tests and check-ups for seniors
Maintaining your elderly parents' well-being and averting probable problems requires routine tests and examinations. Evaluations help identify common persistent illnesses including diabetes, hypertension, and high cholesterol as well as serious illnesses like breast or colorectal cancer. If the elderly person has a chronic condition, monitoring is crucial to preventing and minimizing the consequences of deteriorating symptoms and financial and medical challenges. As It might be difficult for our senior loved ones to remember to get periodic tests done, a compelling senior home care can help them promote active participation, provide transportation, and more. (more…)
Author Interviews, Neurology / 19.12.2022

MedicalResearch.com Interview with: Regina Blye, Chief Program and Policy Officer Discusses the  Living with Paralysis & Caregiver National Survey Conducted by the Christopher and Dana Reeve Foundation MedicalResearch.com: How large is the population of Americans living with paralysis?  Response:  There is a significant population of Americans living with paralysis. To note, a 2013 study by the Christopher & Dana Reeve Foundation found that 1 in 50 people in the US are living with paralysis. This is approximately 5.4 million people. I, myself, have lived with a spinal cord injury (SCI) for over 35 years. While some progress has been made over the past few decades, there is still work to be done. In a new survey conducted by the Christopher & Dana Reeve Foundation called “Living with Paralysis & Caregiver National Survey,” we learned that a majority of Americans (69%) underestimate the prevalence of those living with paralysis in the U.S. - about two out of every 100 individuals. Given the notable size of the population, we must work together to educate and inform families, business leaders, advocates, policymakers and the general public to help improve the quality of life for those living with, or impacted by paralysis. The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by advancing innovative research and improving the quality of life for individuals and families impacted by paralysis. While we’ve been fortunate to make advancements with significant support from the community, we must all unite to accelerate comprehensive information, resources, referral services, and innovative research together. (more…)
Author Interviews / 13.05.2020

MedicalResearch.com Interview with: Celine Latulipe PhD Associate Professor University of Manitoba MedicalResearch.com: What is the background for this study? What are the main findings? Response: We wanted to find out how many hospitals offer proxy accounts for caregivers of adult patients. Most patient portal systems allow proxy accounts for parents of pediatric patients, so we know the underlying systems support the creation of proxy accounts. When we were starting this research, the two big healthcare systems where I was located did NOT offer such proxy accounts for caregivers of adult patients, and a staff person at one of those hospitals suggested adult patients share their passwords with their caregiver, if the caregiver needed access to the portal. As a computer scientist, I am well aware of the security and privacy risks associated with password sharing, and I was appalled by this advice. So we did this survey across the US and we found that 45% of the staff contacted in our study gave similar password sharing advice. This is hugely problematic. Caregivers using a patient's password means the caregiver can see everything in the medical record, including things the patient might not want the caregiver to know, such as past diagnoses of stigmatized illnesses, substance abuse or reproductive health decisions. Also, because password re-use is common across systems, a caregiver with a patient's portal password may now have access to the patient's online banking. (more…)
Author Interviews, Heart Disease, Social Issues / 11.09.2019

MedicalResearch.com Interview with: Dr. Heather Tulloch, C. Psych Clinical, Health, and Rehabilitation Psychologist Division of Cardiac Prevention and Rehabilitation Associate Professor, Faculty of Medicine University of Ottawa Heart Institute MedicalResearch.com: What is the background for this study? Response: It is well established that many caregivers experience distress when caring for a loved one with cardiovascular disease. For example, over 40% of caregivers in Ontario, Canada, report high psychological, emotional, physical, social, and emotional stresses imposed by the caregiving role. Ironically, caregivers are vulnerable to developing their own poor cardiovascular health. For example, chronic stress brought on by a caregiving role increases caregivers’ cardiovascular reactivity (i.e., blood pressure, heart rate) and impaired endothelial function. Many caregivers also report poor preventative health behaviours and low quality of life scores. (more…)
Alzheimer's - Dementia, Author Interviews, JAMA, Mental Health Research, Sleep Disorders / 23.08.2019

MedicalResearch.com Interview with: Chenlu Gao, MA Graduate Student Department of Psychology and Neuroscience Baylor University Michael Scullin, PhD Assistant Professor Department of Psychology and Neuroscience Baylor University  MedicalResearch.com: What is the background for this study? Response: According to the World Alzheimer Report, dementia affects 50 million adults worldwide, and this number is expected to approach 131 million by 2050. Dementia patients often require assistance with daily activities from caregivers. The Alzheimer’s Association reported that, in the United States, 16 million caregivers spend on average 21.9 hours per week providing care for patients with dementia. Being a caregiver is stressful, which not only challenges emotional, cognitive, and physical health, but is also associated with shorter and poorer sleep at night. If a caregiver cannot obtain restorative sleep at night, their quality of life and their abilities to perform the caregiving role can be compromised. For example, sleep loss may jeopardize caregivers’ memory, causing them to forget medications or medical appointments for the patients. Sleep loss can also impair immune functions, causing the caregivers to suffer from illnesses. In the long-term, sleep loss is associated with cortical thinning and accumulation of beta-amyloid and tau, which increase the risks of dementia. Undoubtedly, there is a need to systematically study whether caregivers sleep less or worse during the night and whether we can improve their sleep quality through low-cost behavioral interventions. To answer these questions, we systematically reviewed and meta-analyzed 35 studies with data from 3,268 caregivers of dementia patients.     (more…)
Accidents & Violence, Author Interviews, Pediatrics / 28.06.2019

MedicalResearch.com Interview with:

Amanda Fingarson, DO Attending Physician, Child Abuse Pediatrics Ann and Robert H. Lurie Children’s Hospital of Chicago Assistant Professor of Pediatrics Feinberg Northwestern School of Medicine 

MedicalResearch.com:  What is the background for this study?  What are the main findings?

Response: Child physical abuse is a substantial pediatric public health issue, with significant morbidity and mortality. Studies have found that men, particularly children’s fathers and mothers’ boyfriends are common perpetrators of physical abuse. There is still a lack of knowledge, however, about the specific caregiver features that increase a child’s risk for physical abuse.

Our study design was unique, in that it was a multi-center study that compared young children with abusive and accidental injuries. Our primary finding was that abuse was much more likely when a male caregiver was present, and the resulting injuries were more likely to be severe or fatal. The presence of the mother’s boyfriend was the riskiest scenario, with the highest likelihood of abuse. Similarly, we found that caregiver relationships of less than 1 year increased the odds of abuse. Overall, the likelihood of abuse with female caregivers was much lower, with the exception of female babysitters.  A final important finding of our study was that caregiving arrangements that were different than usual at the time of injury were at increased risk of abuse, suggesting that a stable and consistent caregiver is also important.  (more…)

ASCO, Author Interviews, Cancer Research, End of Life Care / 09.09.2016

MedicalResearch.com Interview with: Erin Kent, PhD, MS Program Director Outcomes Research Branch of the Healthcare Delivery Research Program National Cancer Institute MedicalResearch.com: What is the background for this study? Response: Informal or family caregivers assist loved ones by providing care which is typically uncompensated, takes place typically at home, and often involves significant efforts for an extended period of time. Caregiving can require the performance of demanding tasks, which include managing symptom burden, monitoring for side effects from treatment, coordinating care, administering medication, and managing a care recipient’s financial and social obligations. In addition, there are many unique aspects of cancer that can place unique demands on caregivers, including sometimes a rapid deterioration of health, the receipt of multi-modal therapy (eg. surgery, chemotherapy, and radiation), and the possibility of cancer recurrence. (more…)
Author Interviews, Depression, End of Life Care, JAMA / 28.05.2015

Katherine Ornstein, PhD MPH Assistant Professor Brookdale Department of Geriatrics and Palliative Medicine Institute for Translational Epidemiology Icahn School of Medicine at Mount Sinai One Gustave L. Levy Place, Box 1070 New York, NY 10029MedicalResearch.co Interview with: Katherine Ornstein, PhD MPH Assistant Professor Brookdale Department of Geriatrics and Palliative Medicine Institute for Translational Epidemiology Icahn School of Medicine at Mount Sinai New York, NY 10029 Medical Research: What is the background for this study? What are the main findings? Dr. Ornstein: There is an increased focus on the need to support caregivers and families, particularly at the End of Life (EOL). They play a critical role in the care process and decision making, yet this can be a very high stress role with an increased risk for negative consequences. Hospice services, which are increasing, are focused on palliative rather than curative care and include medical services, symptom management, spiritual counseling, social services and bereavement counseling delivered by an interdisciplinary team of professionals for dying patients.  An important part of the hospice service is the provision of support to families during illness and after death.  Prior research suggests that hospice (which is cost saving, has benefits to patients), may also  be beneficial to families. Yet these studies have been largely limited to patients with cancer, have failed to adequately control for differences between patients who do or do not use hospice. Overall, there was an increase in depressive symptoms after death.  However, surviving spouses of those who used hospice were more likely to have a decrease in depressive symptoms. We found that the positive benefit of hospice was much stronger when we looked at least 1 year after death. (more…)
Author Interviews, Heart Disease, Social Issues / 16.03.2015

Colleen K. McIlvennan, DNP, ANP Assistant Professor of Medicine University of Colorado, Division of Cardiology Section of Advanced Heart Failure and TransplantationMedicalResearch.com Interview with: Colleen K. McIlvennan, DNP, ANP Assistant Professor of Medicine University of Colorado, Division of Cardiology Section of Advanced Heart Failure and Transplantation Medical Research: What is the background for this study? Response: Destination therapy left ventricular assist device (DT LVAD) patients are often older with significant comorbidities that preclude heart transplantation. As such, the decision to get a DT LVAD is arguably more complicated than the decision to receive a temporary LVAD in anticipation of a transplant. Centers offering LVADs often require the identification of a caregiver prior to proceeding with the implant. Caregivers are commonly female spouses of DT LVAD patients, who are also older with co-morbidities. Understanding their perspective in DT LVAD decision making is extremely important as they are at particular risk for experiencing stress and caregiver burden due to the increased demands on caregiving with DT LVAD. Medical Research: What are the main findings? Response: We performed semi-structured qualitative interviews with 17 caregivers: 10 caregivers of patients living with DT LVAD, 6 caregivers of patients who had died with DT LVAD, and 1 caregiver of a patient who had declined DT LVAD. Throughout the interviews, the overarching theme was that considering a DT LVAD is a complex decision-making process. Additionally, three dialectical tensions emerged: 1) the stark decision context, with tension between hope and reality; 2) the challenging decision process, with tension between wanting loved ones to live and wanting to respect loved ones’ wishes; and 3) the downstream decision outcome, with tension between gratitude and burden. (more…)
Author Interviews, Depression, End of Life Care / 04.09.2014

MedicalResearch.com Interview with: Nenette M. Jessup MPH, CCRP Research Associate/Project Manager TASK II Indiana University School of Nursing Indianapolis, IN 46202 Medical Research: What are the main findings of the study? Dr. Jessup: Similar to others, we found that females and non-African American caregivers experienced more depressive symptoms and females perceived greater task difficulty. Because female caregivers comprise the largest group of caregivers in the United States, the consistency of this finding has implications for continued social policy efforts to improve their plight. However, our results also suggested an interaction effect between race and type of relationship, with African American spouses experiencing the most difficulty with tasks of caregiving. Inconsistencies in the existing literature about this finding signal the need for a greater understanding of group differences. Individualized interventions may also be of benefit for stroke caregivers. (more…)
Author Interviews, BMJ, End of Life Care / 15.07.2014

Dr. Kirsty Boyd Programme theme head (Clinical Communication) Honorary Clinical Senior Lecturer Primary Palliative Care Research Group Division of Community Health Sciences: General Practice University of EdinburghMedicalResearch.com Interview with: Dr. Kirsty Boyd Programme theme head (Clinical Communication) Honorary Clinical Senior Lecturer Primary Palliative Care Research Group Division of Community Health Sciences: General Practice University of Edinburgh Medical Research: What do we know already about people with ‘multimorbidity’? Dr. Boyd: We know that an increasing number of patients have multiple life-limiting illnesses or progressively deteriorating health due to several long term conditions or general frailty. Caring for them well poses major challenges and they are often hospitalised in the last year of life. They do not fit well into illness and healthcare models that focus on single conditions. Understanding the experiences of patients and their family caregivers is vital to inform improvements in best supportive care and palliative care. We wanted to build on care models for integrated care of people with long term conditions and consider the needs of those at risk of dying with multiple conditions in more detail. (more…)
AHA Journals, Author Interviews, Social Issues, Stroke / 25.03.2014

Jill Cameron, PhD M.Ed., B.Sc. O.T CIHR New Investigator, Associate Professor, Department of Occupational Science and Occupational Therapy Graduate Department of Rehabilitation Science Faculty of Medicine, University of Toronto Adjunct Scientist, UHN-Toronto Rehabilitation InstituteMedicalResearch.com Interview with: Jill Cameron, PhD CIHR New Investigator, Associate Professor, Department of Occupational Science and Occupational Therapy Graduate Department of Rehabilitation Science Faculty of Medicine, University of Toronto Adjunct Scientist, UHN-Toronto Rehabilitation Institute MedicalResearch.com: What are the main findings of the study? Dr. Cameron: In our study with 399 stroke survivor, caregiver dyads, caregivers reported more psychological wellbeing when they provided more assistance to stroke survivors who had fewer symptoms of depression, better cognitive functioning, and who had more severe strokes.  In addition, caregivers who maintained participation in valued activities, had more mastery, gained personally providing care, were in better physical health, and were older reported more psychological wellbeing. (more…)